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New Report: Lived Experience of Prenatal Substance Use

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three women pose for a photo in front of a large tree

Pictured above: The Colorado Lab’s evaluation team on lived experience of prenatal substance use (L to R): Dr. Courtney Everson, Sr. Project Director, Colorado Evaluation and Action Lab; Ashley Miller, Peer Researcher; Sarah Brown, Peer Researcher. Not pictured: Jo Beletic, Staff Researcher, Colorado Evaluation and Action Lab; Alena Clark, External Research Partner.

A new findings report, Lived Experiences of Prenatal Substance Use in Colorado, identifies risk and protective factors for families affected by prenatal substance use in Colorado. The qualitative study was conducted by the Colorado Evaluation and Action Lab (Colorado Lab) in partnership with the Colorado Department of Human Services, Office of Children, Youth & Families. Peer researchers with lived experiences of prenatal substance use co-designed the study, led data collection, and supported analysis and the development of recommendations. This innovative approach improves rigor and actionability of findings. An Executive Summary for communities and decision-makers helps to translate data into meaningful solutions.

The study captured the stories of 25 birthing individuals, all of whom were in recovery or actively in treatment. Study participants were living in the Denver metro area, Pueblo-Colorado Springs region, or the San Luis Valley. About half the sample were people of color and one-third were part of the immigrant or refugee community.

“The themes that emerged in this study illustrate how substance use during pregnancy is experienced and how services are navigated in Colorado,” said Dr. Courtney Everson, Senior Project Director for the Colorado Lab. “We learned that the perinatal period can be a time that opens up the possibility for substance treatment and recovery. Unfortunately, we also heard that accessing services and support can be difficult due to a lack of knowledge, stigma and fear of child welfare involvement, and disrespect from health care providers. Another big barrier is financial instability, showing the importance of improving economic support for families. The biggest protective factor identified was having a relationship with someone that was trusting and non-judgmental, such as peer specialists.”

Lived experience is a powerful form of data that will be paired with administrative data from the ongoing perinatal substance use data linkage project. The combined findings provide a more holistic picture that will be used to inform policy and practice solutions aimed at improving parent-infant health and setting families up to thrive.

To learn more, please reach out to Dr. Courtney Everson.